Category: Updates

Hi All! Although this is not the update I had planned to write on transplant (but hope to in the next day or so), I still wanted to check in. Today has been FULL with being admitted and getting settled, but I wanted to write a short update because so many of you have checked […]

It’s been a quiet week as we’ve continued to enjoy our time at home and also eagerly awaited word from our transplant team regarding their final plan for Bo’s treatment. We finally got the call yesterday that they have made their decision! Bo’s donor is donor B! For now, we know that he is a […]

We received word this morning that our transplant team has decided to push out our admit date to September 9th, and our transplant date to September 19th! First, this is a GOOD thing. Things with both Donor A and Donor B are moving along, but some recent developments have caused our team to pause and […]

Friends, We have 2 big praises to report! First, Bo’s bone marrow biopsy and cerebral spinal fluid (CSF) both came back clear! This is a huge praise and exactly what we want to see! Second, we just received word that everything is clear and good to go with our original donor. It still isn’t clear […]

Hi All, Not too much to share today, but I know many of you were praying for Bo on Friday for all of his procedures. All in all, everything went smoothly. Bo was in quite a bit of pain when he woke up from anesthesia and that was really tough, but he’s such a trooper […]

Friends, We are finally home from the third round of chemo. It was bitter sweet saying goodbye to doctors, nurses, and hospital staff who have taken such amazing care of not only Bo, but our family. Many of them have felt like dear friends during some long, lonely days. We will miss each of them […]

I want to start by saying THANK YOU to all of you who have been praying. It has been a tough 6 days and your faith has held us up and increased our own faith. Bo has been fever free since about 8pm last night. He is energetic this morning and so very happy! It […]

Bo is on day 4 of high fevers. He has been on steady Tylenol every 4 hours since Friday when they started. Luckily, the blood cultures they take daily continue to be negative so far for a bacterial infection. CMV results have yet to come back. Sadly, Bo’s fevers aren’t responding to Tylenol the way […]

Well, Bo spiked a fever today. Luckily, his care team had been keeping a close eye since it seemed inevitable, and they moved into action. Blood cultures were drawn to check for a bacterial infection and they started him on 2 antibiotics–one to treat bacterial and one to treat fungal. They are also rechecking his […]

Friends, Wanted to update you all and ask for prayer. The last few days have been great, but today Bo has started to feel pretty lousy. He’s “flirting” with a fever (as his nurses say), so he’s running just a bit warm but not feverish yet. He also started getting hives on his cheeks, chin, […]